Today I went to my appointments at the UNC Women's Specialty Clinic for genetic counseling and then my First Trimester Screening. The screening is a combination blood test and ultrasound to check for Down Syndrome, Trisomy 18, and Trisomy 13.
I got an ominous feeling when I saw the ultrasound tech who had done the ultrasound when Mary Grace had passed away....luckily, she called another patient, not me.
I got the really super nice ultrasound tech who had helped with my amniocentesis with Mary Grace. This guy just instantly puts you at ease. And when he started telling me about the problems he saw with this pregnancy, and I started bawling on the table, he handed me a washcloth to cry into...you know, the ones they have handy to wipe the ultrasound gel off? He made me feel as comfortable as I could with the new circumstances surrounding my pregnancy and helped me focus on the positives.
I'll start with those.
First, baby is alive and wiggling all around with a strong heartbeat.
The nuchal fold measurements came back within a normal range which means that it is unlikely that this baby has Down Syndrome, Trisomy 18, or Trisomy 13.
I had plenty of amniotic fluid.
The baby's heart and brain looked good so far for this stage of pregnancy.
We got some good pictures.
The bad news:
Baby is measuring exactly 1 week behind. I am 13 weeks and 2 days and baby was measuring 12 weeks and 2 days.
My placenta does not look good. It looks like swiss cheese; very cystic. It is much "thicker" than it should be.
The Maternal Fetal Medicine doctor came in and said that this looks like it could be another Triploidy case, or it could be a molar pregnancy. Apparently they are leaning more toward a molar pregnancy since I have a lot of the symptoms associated with molar pregnancy, such as: spotting, severe nausea, developing complications like thyroid disease, high blood pressure, protein in urine.
They did an extra blood test today called a NIPT which is a new test that should tell us if this is Triploidy or a molar pregnancy. The results will take up to 2 weeks. :(
In the meantime, my blood pressure at the appointment was as high as 155/112 and I had tachychardia at the office. Of course, it could have been due to all the bad news.
The MFM sent me immediately back over to my regular OB. My blood pressure was normal at his office (of course they used the regular cuff on me twice, instead of the small cuff recommended by the MFM office). OB found +2 protein in my urine and was debating putting me into the hospital! What? I was not prepared for that. He consulted with MFM doc and agreed to send me home but read me the riot act and told me to come back in if I began to feel worse.
I have an appointment with regular OB on Friday. With MFM on Monday. They want me to do a CVS test on Monday to try and get results sooner. Ugh....this is Mary Grace all over again.
God help us.
Would you please pray for us?
Doctor called and told me I am definitely hyperthyroid right now with TSH levels at less than .005, T3 at 6.9 (normal = 2-3.9) and Free T4 at 2.2 (normal = .7-1.4). So that is indeed why I feel super jittery and my hands are shaking. More bad news is that my HCG levels came back very high at 382,854 when they should be in the 50,000-100,000 range for this point of my pregnancy. This is highly indicative of a molar pregnancy, according to the doc. Between my regular OB and the MFM they decided to admit me to REX hospital. However, when they called to get me a room, REX is entirely booked....so they debated sending me to UNC (over an hour drive at least), but after I had packed my bags they called back and decided I could stay at home tonight and go straight to the ER if I have any worsening symptoms. So I am home for the night.
Tomorrow a.m. I will head over to UNC to have the CVS test done (an invasive test that they do instead of an amnio since I am less than 15 weeks). They are repeatedly telling me to start thinking about having to make some "tough decisions" if my health starts to deteriorate. We all know what that means. This is actually turning out to be worse than Mary Grace, because I was "free" to carry her as long as she lived. With this baby I am already feeling "pressure" to terminate.
Tried to pray the Divine Mercy Chaplet on EWTN today at 3pm...but I could only sit through it and stare at the tv. But really felt peace when they said the closing prayer:
Eternal God, in whom mercy is endless and the treasury of compassion — inexhaustible, look kindly upon us and increase Your mercy in us, that in difficult moments we might not despair nor become despondent, but with great confidence submit ourselves to Your holy will, which is Love and Mercy itself.